Our discovery with Juvenile Rheumatoid Arthritis

Archive for April, 2011

Cat’s Ankle is bothering her

Today she came home from school, for the first time in a long time, and said her ankle was bothering her. Not sure what is causing it but it has me worried.

Cat’s pain

So I am unsure if Catherine is in pain or not, she doesn’t talk much about it, she seems to be happy but I don’t know. She’s a quiet child and doesn’t complain much about anything. However she isn’t vocal, she did tell me today that her mouth is sore, so it leads me to believe that she is getting mouth sores from the methotrexate. I looked in there and it looks a little swollen. I don’t know, she doesn’t go back to the Ped. Rhem doc until the end of May.

9 Things Parent’s Should Know about Methotrexate

1. It is not a quick fix.

In some patients you can see effects after a few weeks but it could be up to 12 weeks before you notice anything.

2. Regular Monitoring is Very Important.

There are serious side effects in some patients, including liver problems. Regular blood tests can help monitor the effects of methotrexate

3. It must be taken with folic acid.

Methotrexate interferes with the body’s ability to use folate and over time it can deplete it. This can cause diarehea, loss of appetite, mouth sores, and hair loss.

4. Taking with food doesn’t help the nasuea.

Methotrexate Nausea isn’t related to the stomach but to a stimulation of a receptor in the brain that causes nausea.

5. Shots have benefits over pills.

When you give a shot it goes into the body with pills, it depends on what is in the stomach. At higher doses the shots may be safer than pills because it is distributed through the body via circulatory system than pills which are digested and go directly to the liver.

6.Methotrexate is used together with other drugs.

Recent studies have shown that methotrexate works better with biologic agents or other DMARDs.

7. The injection is drinkable

If you can’t take a pill, the doctor can prescribed the injection liquid.

8. Alcohol is off limits.

Taking Methotrexate and drinking alcohol increases the risk of liver damage. No underage drinking!

9. It doesn’t work for all kids.

Researchers found that kids who were sick longer before they began methotrexate benefited less from it.

Juvenile Arthritis in your Jaw.

It is understandably difficult to relate a disease of the elderly to a child. It is very important to see your child’s rheumatologist regularly but it is also important to see the dentist or orthodontist to make sure JIA is now in your jaws. Arthritis is your jaws is called, TMD is not just one disorder, but a group of conditions, often painful, that affect the jaw joint (temporomandibular joint, or TMJ) and the muscles that control chewing. TMD disorders fall into three main categories: myofascial pain, internal derangement of the joint, and degenerative joint disease, such as osteoarthritis or rheumatoid arthritis in the jaw joint.

Catherine has it in both her jaws, and had two joint injections in Jan 2011, to help with the pain.

ok 4th Shot of Enbrel, but 2nd week on Enbrel Kit

So this is the 4th Shot she has had of Enbrel (2 of pre-filled, and 2 of the Enbrel Kits). However the Enbrel Kit gives her a site injection reaction, she develops itchiness and a rash, however it does not burn like the pre-filled needles. I am not sure we go back to the ped rheum doc in May. So I am not sure.

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