Our discovery with Juvenile Rheumatoid Arthritis

Catherine’s is doing ok

We have Catherine on physical therapy routines, and she has been on Enbrel for four weeks straight, without being off of the medicine. I thought we were not going to be able to give her the injection she started acting like she was taking a cold, but not sure. I have figured that all the steroids she has taken as a little girl, has started her through puberty quicker. Which kind of sucks for her age. She is pretty excited about going to school, we have her 504 plan in place. We have ordered her a cool wheeled book bag, that will allow for her to transport her books without pain. This has certainly been a learning process. I am pretty thankful, it seems that Catherine is in a lull right now, and nothing is hurting and nothing is flaring up. Two years ago this time we were just so shocked and not knowing what to do. Kids are so resilient with injuries and health care. I don’t think she will be playing sports. We are looking into the swim team on the army post, water exercises don’t put as much pressure on her joints.

Comments on: "Catherine’s is doing ok" (1)

  1. Beth Ostgaard said:

    I am nearly a week past my infusion of Actimra. The building in Asheville that the infusion clinic was housed had a fire and a firefighter was killed. They are still trying to catch up on back logged infusions at a new site. Glad to her Catherine is doing well.

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