Our discovery with Juvenile Rheumatoid Arthritis

Posts tagged ‘Children with Arthritis’

Tuesday Morning

Well yesterday Cat went to the pediatrician for followup and she said it looks like arthritis in her ankle. I just can’t wait until the 21st to get here so we can go to Chapel Hill to get answers. I am just amazed, I asked the pediatrician if this will affect her left knee or ankle and she said you know she just can’t tell b/c this disease affects many joints. I know this has got to be a test that God is putting me through to see if I can handle this. I just wish it would all go away.

(this is Catherine riding on her great grandfather’s truck) driven by grandma!

This week

Well this week has been a busy one, I started a new internship. I got a graduate assistant project issued to me. I have been busy working on the non profit business. I have had to let some of the other volunteer work in my life go because it was just too much, and I wasn’t spending the time I wanted to with my kids. Now with the internship and graduate assistantship, I am able to be home earlier in the evenings.

Catherine wants to take Cheer again. Her orthopedic surgeon said she can do PE as pain allows. I am not sure what to do, also her baby sister wants to take cheer with her. SO who knows what the cheer future holds, I am pretty excited the first competition is in December.

Good news, I got the articles of incorporation and other stuff sent off for the Non Profit Organization. Now we are in the process of getting funding! Catherine took her injection last night, and did ok, she was feeling kinda sick. She said the medicine stings when it goes in her arm. So far today she hasn’t complained of her stomach. However she still has morning pain. I just don’t know, on the other hand her asthma has been pretty good so far. Cross your fingers everyone!

First Day of School

Today was a awesome first day. I met with Cat’s teacher this morning to let her know what was going on, and take the doctor’s note. Yesterday was a good check up with the orthopedic surgeon he said her knee was looking better, and see her back in 2 months. So now we alternate months between Specialist and Surgeon. We will know more next month from the pediatric specialist. Monday and Tuesday Cat woke up with a stiff knee, so I am,  unsure with what is going on. She started complaining about her ankle on and off last week, that’s something we need to check out with the doctor. Catherine said that her knee started hurting when she was playing on the playground.

As far as mom, I started training on the cycle last week 10 miles every other day.

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